Dominic Update 4.0 – Brown Eyed Baker

Hi every person! I can’t feel that we are on the cusp of Labor Working day and summer season coming to a near. The final 5 to 6 months have been a full blur and this summertime, in unique, has flown by. There’s been hospitals (chemo, stem cell harvest, surgical procedures), clinic appointments, and driving back again and forth to New York.

But, just one foot in front of the other and one particular day at a time, we are grateful to be heading into a new time with a strong boy and hearts total of hope.

Dominic had a fast paced to start with few months of August…

🔍 Very first, he experienced a new set of scans (MRI + MIBG) additionally a different bone marrow biopsy. The scans still exhibit sickness all over his bones but most of the places are “dimmer” than ahead of, and the bone marrow involvement lowered by about 50%.

So, there is nonetheless perform to do, but there is an advancement. And! Dominic did each of the scans without having anesthesia (he has been sedated formerly due to the fact you have to lay completely nevertheless and the MIBG is over 2 several hours). He’s a rock star.

🏥 Upcoming, he had his first round of immunotherapy. The antibody he’s provided targets the protein of neuroblastoma cells and because they normally sit on nerve cells, there is major nerve soreness accompanying the treatment. The infusion is brief (45 minutes) but extreme.

There is a ton of pre-treatment and soreness administration all through and right after, and he would generally slumber the complete relaxation of the day afterward. But, the treatment options are outpatient so no hospital stays, and they never influence counts like chemotherapy, so no neutropenia or blood or platelet transfusions.

🦸‍♂️ Then, he crossed off yet another massive hurdle… radiation. He did this awake with no anesthesia as well… two times a working day for 5 days, he was strapped down working with a specific mask that was molded to his head and upper human body to continue to keep his head and neck in the actual exact placement just about every time (his clavicle was radiated owing to the cluster of diseased lymph nodes that have been there, as nicely as the tumor mattress in his abdomen). An amazing girl who works there has the little ones choose what they want their masks to be and then personalized paints them… Dominic selected Iron Guy. There are some unbelievably distinctive people today in this entire world.

He could also select whatever songs he preferred to be piped in just about every time and selected Christmas music just about every working day 💕🌲 He entirely rocked it and the people operating there had been absolutely phenomenal.

➡️ Next… we get to be property for a few of months, then it is back again to NY for one more round of immunotherapy, a new set of scans, and a different bone marrow biopsy. 

📘 In the meantime, he began kindergarten this 7 days! He’ll be becoming a member of course just about till his oncologist provides him the go-ahead to attend in individual, which we’re hoping will be late September.

💈 His eyebrows, eyelashes, AND hair have all commenced expanding back! He’s experienced a ton of electrical power, has gained back all of the fat he dropped after surgical treatment and that last round of chemo and is or else accomplishing really, genuinely effectively.

❤️ Thank you all for your ongoing prayers, it means so substantially to our loved ones.


In other information, I am planning to get some email messages scheduled out heading into the tumble and holiday getaway season to refresh some internet site information. So, you can glance forward to me popping into your inbox a lot more often in the coming months 🎉

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